precedent for waiving the waiting
period for beneficiaries with AIDS
was established when only a
Smonth waiting period was
mandated for persons with end-
stage renal disease, another group
with very high medical expenses.
William L. Roper, M.D., former
Administrator of the Health Care
Financing Administration, has stated
that the waiting period should not
be eliminated only for DI
beneficiaries with AIDS or other
specified diseases because
beneficiaries with other conditions
also incur high medical care costs:
For example, beneficiaries with
cancer also have characteristics
that are associated with high
medical expenses during the
waiting period.
In the 1980 amendments,
Congress authorized demonstration
projects and experiments to test the
effectiveness of alternative methtis
of encouraging DI beneficiaries to
return to work. One proposal was to
shorten or eliminate the initial
24-month waiting period to improve
the chances for medical recovery by
improving access to medical
services relatively soon after the
onset of disability. If enough DI
beneficiaries were able to return to
work because of earlier and more
effective medical intervention, the
long-run savings in DI cash benefits
and Medicare payments might
offset the initial increase in costs
resulting from shortening the 2-year
waiting period under Medicare.
The purpose of this article is to
present estimates of what Medicare
costs would have been during the
2-year waiting period for a cohort of
disabled-worker beneficiaries first
entitled to DI benefits in 1972,
assuming the waiting period had
4 William L. Roper and William
Winkenwerder, “Making Fair Decisions
A,bout Financing Care for Persons with
AIDS,” Public Health Reports, MaylJune
1988, pages 305-308.
not actually been in effect. The
article also presents findings on the
extent of health insurance coverage
for disabled-worker beneficiaries
during the waiting period. Lastly,
the article presents data on the
extent of retroactive entitlement to
disability benefits, which would
imply retroactive entitlements to
Medicare benefits as well, if the
waiting period were eliminated. Due
to limitations on data availability,
the analysis of these three aspects
of the waiting period question are
addressed with different data sets
reflecting different time periods.
Still, the analysis provides
information on the basic framework
of the waiting period issues that are
regarded as relevant today.
Estimating Medicare Costs
Expenditure data for medical care
utilization by disabled-worker
beneficiaries in the first 2 years of
DI entitlement are not available.
The Medicare administrative record
system does not contain this
information because Medicare
eligibility does not begin until after
the first 2 years of eligibility for
disability benefits. Various personal
interview surveys that might have
such information do not contain
sufficient numbers of DI program
beneficiaries with recent awards to
permit an analysis. s
’ Gordon Bonham, “Procedures and
Questionnaires of the National Medical Care
Utilization and Expenditure Survey,”
National Medlcal Care Ulilizatlon and
Expenditure Survey (Series A,
Methodologtcal Report NO. l), National
Center for Health Statistics, Public Health
Service, Washington, DC, 1933, and Gordon
Bonham and Larry Corder, “National
Medical Care Utilization and Expenditure
Survey Household Instruments, Instruments
and Procedures 1,” Natlonal Medical Care
Utilizatlon and Expenditure Survey,
National Center for Health Statistics, Public
Health Service, Washington, DC, 1981.
An estimate of the cost of
eliminating the Medicare waiting
period must include costs for those
DI beneficiaries whose cash
benefits are terminated, due to
death or recovery, before the end of
the period. Costs also must be
estimated for the first 2 years of DI
entitlement for beneficiaries who
ultimately become eligible for
Medicare. Although actual
expenditure data for medical care
use by DI beneficiaries in the first 2
years are not available, empirical
regularities in the Medicare
utilization data after the first 2 years
suggest the possibility of making
predictions of utilization in the first
2 years based on subsequent
utilization. 6 The data indicate that
Medicare use for beneficiaries who
died or recovered in the first 2
years might be estimated from the
utilization experience of those who
died or recovered at a later point in
time. Over time, the cost patterns
for beneficiaries who died appear to
be the same regardless of the
length of time they were in the
Medicare program. Similar results
seem to hold for those who
recovered.
These findings led to the
conclusion that estimates of costs
during the waiting period could be
obtained by applying the utilization
rates of decedents, survivors, and
recovered persons observed after
the waiting period to the observed
incidence of death and recovery in
the waiting period. In addition,
average levels of medical care
utilization for those in the DI
program over long periods of time
seemed very stable in that period,
e Barry Bye, Gerald Riley, and James
Lubitz, “Medicare Utilization by Disabled-
Worker Beneficiaries: A Longitudinal
Analysis,” Social Security Bullelin,
December 1967, pages 13-28.
4 Social Security Bulletin, May 1969/Vol. 52, No. 5